Trust issues

It really pains me to say this, but we have entered an era when we can no longer trust our government’s health agencies or the advice they give us. I know that there are some people who have felt this way for a long time (in some instances for good reason); however, for the most part government agencies like the CDC and the FDA have relied on sound science and expert opinion to guide their recommendations. Sadly, this is no longer true. If we had any doubt about it, it was erased by watching Robert F. Kennedy Jr.’s appearance before a Senate committee yesterday.

So what are we supposed to do? How do we get reliable guidance on things like vaccines and screenings? Who do we trust now?

Some states – such as the consortium formed by California, Oregon, Washington and Hawaii – are going to come up with their own vaccine guidelines based on the most evidence-based medical research. I hope that they are successful and that the people living in those places feel reassured and will place their trust in their local public health professionals. For the rest of us, though, the reality may be that we have to do our own research, apply a critical eye to what we hear and read, and be our own health advocates.

To that end, I’m beginning to compile a list of sources that I believe are reliable, trustworthy, and based on solid medical evidence. Here’s what I have so far (in no particular order):

KFF Health News – If you want all the latest health news about policies and the health system in general, this is a good place to get it. It is published by KFF, an endowed nonprofit organization that doesn’t appear to be beholden to anyone. All of their content is free to everyone. Currently they have articles on their site about the upheaval at the CDC, confusion around back-to-school vaccine policies, as well as health studies that have been published elsewhere. Another source for public health news is the Public Health Newswire published by the American Public Health Association.

Doing Well – A newsletter from Arizona State University Health, Doing Well’s tagline is “Better health, one story at a time.” Because it’s published on Substack, it does require a free subscription, but they don’t send you too many messages, and you can access the stories through audio as well as reading them. Recent stories have covered how to stay healthy when wildfires are nearby, how to get more fiber in your diet, and a podcast about underhydration. In addition, each newsletter defines a medical term that people might not understand, such as “microbiome” and “epigenetics.”

Women’s Health from Johns Hopkins – This site has comprehensive health and wellness information specifically targeted to women’s health concerns at all ages, including preventive care, sexual health, menopause and stress.

Your Local Epidemiologist – Dr. Katelyn Jetelina is a public health professional and epidemiologist who writes this Substack newsletter (you might be asked to subscribe). I haven’t spent a lot of time with it, but I know several people who speak very highly of her writing, and her ability to translate complicated and confusing information into a form that is easily understandable for laypeople. She currently has a guide to the fall 2025 vaccines on her site.

The medical specialty associations – Organizations dedicated to medical specialties continue to issue their own sets of health guidelines and can be a good source of information for consumers. These include the American Academy of Pediatrics, which still maintains its recommendations for childhood vaccinations, the American Heart Association for heart health information, and the American Psychological Association, which supports mental health and has posts on topics like misinformation and “managing uncertainty in a chaotic work environment.”

And for dealing with stress and finding meaning in life, despite the chaos, check out Greater Good Magazine from the Greater Good Science Center at the University of California, Berkeley.

Finally, I want to express my heartfelt gratitude to the employees, past and present, at the CDC who have tried to do the right thing for the American people – thank you for fighting the good fight.

Where to now for public health?

Almost five years ago, I gave up writing in this space because I didn’t have much left to say and I thought there were other voices that needed to be heard. The experiences of the last couple of months, however, have compelled me to speak up again. This platform is a place that I can use my voice, small as it is, to counteract the really devastating changes that are happening to our country — the opportunity to use my voice in the voting booth is way too far off.

Today I’m most concerned about the state of public health in America. Yesterday we saw lines of health agency employees locked out of their offices, finding out when they showed up for work that they were out of a job or put on leave. The advisory committees that help keep our food supply safe and determine the makeup of next year’s flu shots have either been disbanded or had their meetings cancelled. Research dollars have been cut off from the academic centers where new treatments for cancer or heart disease might be discovered.

Who is protecting us, the people, if all these institutions are dismantled? I’ve never been a person who lacked trust for the government, but my trust is going to be really shaken if these changes aren’t overturned. So, my goal here is to provide you with information, links and resources where you can still find trustworthy health information, and to amplify the voices of those who are fighting for us.

One of those organizations is the American Public Health Association, which has introduced a new undertaking, For Our Health, to bring together people in the public health sphere, and defend evidence-based health initiatives. Last week, they wrote to Congress about the cuts to public health agencies, saying in part,

Public health is not a partisan issue—it is a core responsibility of the government and essential
to our nation’s security, stability, and prosperity. HHS and CDC play an irreplaceable role in
safeguarding American lives, yet their mission is sabotaged by neglect and misinformation at
the highest levels. Failure to act now will result in preventable suffering, deaths, and the further
deterioration of our nation’s standing as a global leader in health and innovation.

I encourage you to check out For Our Health, and to use your voices too. Let’s protect ourselves and each other.